Tuesday, February 5, 2013
Life with Dysautonomia
I was emailed this video by some friends with Dysautonomia. This is one of the diseases that our daughter, Ashley lives with. It goes hand in hand with several other diseases. I have shared with you through the years about her struggles and trips to Mayo Clinic. There are very few doctors that specialize in treatment of Dysautonomia, so she doesn't always get the medical care that she needs. When things get really bad--we take her to Mayo Clinic in Minnesota.
It was important for me to share this with you, as it is kind of a strange illness and there is very little awareness or understanding of what it is like to live in a body with a goofed up autonomic nervous system.
Sharing this video is my small way of contributing something to the lives of people who are stricken with this illness.
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7 comments:
I am honored to have you share Sara's journey with us-I will pray for more good days for her.
Thanks for educating me.
Oh Mary,
Tears in my eyes now. God bless sweet Ashley and Gos bless her friends for doing this video. God be with you too, Mary.
Love you,
~Sheri
Thank you for sharing this video and allowing your readers into your world. You are an amazing woman. Your daughter is truly blessed to have you for her mama.
Oh Mary, This video was done by Sara's friends. I thought Ashley was the one in the video, so sorry. It is good that you all got to see this so you could understand it a bit better. What a lovely group of kids they are. Hugs to Ashley.
~Sheri
Hi Mary,
For some reason I wasn't able to see the video on your blog...When I clicked on it, it said "Embedding disabled by request. Watch on YouTube." Just thought you'd like to know. I was able to find it on YouTube.. The title of the video is "Sara's Life with Dysautonomia" in case anyone else has the same issue.
Anyway, just wanted to thank you for sharing and bringing awareness of this condition. Please know that there is one more person praying for you and your daughter.
Hugs and Kisses,
❤Ana
Mary, I was unaware of this condition. Thank you for helping us to learn something about it. And prayers for Ashley and other brave ones living with this every day.
Hi Mary,
wow, I always wondered what the problem was with your daughter. Am so sorry she has to suffer so with that, what a terrible illness.
Will sure keep her in my prayers.
Blessings, Nellie
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